While there is ample information available regarding the long-term services and supports (LTSS) needs of older adults, data on the LTSS needs of working-age adults (i.e., ages 18-64) with disabilities is severely limited.

In 2018, LTQA, with support from the Commonwealth Fund and in partnership with Brandeis University’s Community Living Policy Center (CLPC), launched an initiative to fill the data void on LTSS needs of working-age adults (i.e., ages 18-64) with disabilities. Based on earlier work, LTQA in 2022 completed two state pilots testing a strategy for obtaining better and more current information through a state-level data collection and survey initiative. LTQA partnered with Washington State and Texas to add supplemental questions on LTSS need and receipt to the 2021 Behavioral Risk Factor Surveillance System (BRFSS), a national survey led by the Centers for Disease Control and Prevention (CDC) and administered by states.



The Community Living Policy Center works to improve policies and practices that keep people with disabilities in the community.


The Commonwealth Fund supports independent research on health care issues and makes grants to promote better access, improved quality, and greater efficiency in health care, particularly for society’s most vulnerable, including people of color, people with low income, and those who are uninsured.